The Final Instalment of The Saga Of The Lump

The final instalment of the Saga of the Lump actually started last Thursday.  Simon had taken the day off work so that I could go to a Revenue and Customs class on allowable business expenses.  He sent me a text in the middle saying ‘Ring me as soon as.’  I texted back saying I didn’t think we were going to get a break what was it.  His reply was that the surgeon had rung about possible not doing the surgery as there was a new beta blocker protocol.  I was fuming.  All well and good to tell us all the options, but 3 days before he was to go in for the surgery?!?!

When I finally got to speak to the Consultant, Mr Dick, he explained that he felt that it was important that we have all the information.  But I did not feel like we got it all as he couldn’t tell us side effects, length of treatment or anything else except that beta blockers had been known to work.  I told him forget it, let’s operate.  He agreed.

We arrived at the hospital at about 745.  We checked in with reception and headed up to the Day Procedures Ward (henceforth known as DPW).  Simon and I watched with much amusement as a youngish lady walked onto the ward wearing a Little Black Dress.  We raised our eyebrows at each other.  And then did so again when she came over and introduced herself as a member of the team operating on Adam.  There has since been debate as to whether she always dresses that way or if she was on her way out after or if she had just arrived from the night before!

She then informed us that Adam would need his blood typed and cross matched because they just weren’t sure how many veins there were or how big they might be.  They usually use something they call ‘magic cream’ for inserting needles on children, but it takes 45 minutes to work and there just weren’t 45 minutes available.  So we held Adam down as they tried to get blood out of what looked like a good vein in his foot.  He cried hysterically as the needle was inserted, with Simon and I holding him, stroking his face and talking to him.  No blood came through the needle, but when the needle was removed he bleed copiously so they put a tube under that and viola they had the blood they needed!

Adam continued to be hysterical as I scooped him up and held him, with Simon pressing a pad on his foot to stop the bleeding, until Adam finally fell asleep in my arms.  At this point he was only wearing a nappy as they had to remove his footed PJs to find a vein for the blood letting, as it came to be called!

He slept for about 45 minutes and then we were taken to the pre-theatre playroom.  He had remained in just a nappy and it was chilly in there so I regretted not redressing him or bringing him a blanket.  It is the only room in the hospital that Simon and I have ever been in that wasn’t completely over heated!

After a short wait, during which Adam entertained himself pushing buttons on this light display thing (if he’d been older, he could have played their Wii! Very well stocked play room!!).  Then we were told that since he is 1, only one parent could take him back.  So Simon said ‘You go.  You can sing to him.’  Simon kissed him and Adam and I went into the anaesthesiology room.  Just like last time, when he had GA for his MRI, he fought hard against the mask, but this time even singing didn’t calm him. The gas finally won and he was asleep.  I kissed his cheek and his forehead, told him I loved him, and was led from the room.  And that’s when I nearly lost it.  I was fine up until then, but leaving him there, so small, unconscious, without me, the tears came.  The person who was walking me out cracked some stupid joke and the moment passed.

Simon and I were starving at this point so we went to the cafe and had some coffee and some food and waited.  And waited.  And waited.

Mr Dick just came to us after about an hour and said it was over.  Adam was fabulous and it was easy to remove.  The mass would be sent to pathology but Mr Dick was convinced it was benign, just a mass of puss and blood and fluid.

After about 15 minutes we were told we could go down to recovery.  We heard Adam long before we saw him, crying his head off.  He stopped once he saw us.  We let him swallow some milk and then took him back to the DPW.

Once there we were informed that Dr Taylor, the anaesthesiologist, was concerned about pain due to the length of the incision.  It was suggested we stay on the ward for at least another 2 hours to see how Adam was as the local wore off and then perhaps overnight for pain management.

Adam in HospitalAdam in hospital pram, post-surgery.

We tried to get Adam to sleep, even taking him for a walk in a hospital pram, but he just wouldn’t settle.  At 2pm Simon realized he was starving and went to get a sandwich as I tried to get Adam some painkiller as he seemed sore when he moved his arm.

Just minutes after Simon left, Dr Taylor showed up.  I said to him ‘I think he hurts, but he’s so unsettled, I am not sure staying here is the best idea.’

Dr Taylor said ‘Well, how about we give you some codeine, you take him home, where I agree he will probably settle better, and if you  need us, ring?’

‘Deal!’ I said and rang Simon, who had just grabbed a sandwich!

And so we came home.

Now, 5 days post op, we’ve had the pressure bandage removed and replaced with regular plasters, which are coming off tonight.  His scar goes side to side, when Simon and I both thought it would go up and down.  Adam has had no pain. And, as we were told it might, the area is swollen and filled with fluid, which should be reducing in the next day or two.  It is, almost, like the lump is still there.

This worries me a bit, of course.  But I’ll see what its like on Monday.

Adam has a follow up with Mr Dick in 3 months, on 30th September.  But, so far as we know, The Saga of The Lump is over.

Almost a year to the day it began…

It’s been a crap week

Full of fibro flairs, cranky babies, busy work schedule and a mum ill in hospital.

I’m not much fun to be around right now but Simon has, as always, been a star.

More complete update soon. I promise.

Letter To My Son – Adam – 12 Months Old

Dear Adam

This has been the fastest and bestest (sic) year of Mama and Daddy’s life.  One year ago yesterday, at 1036am you entered the world, squalling and peeing on me.

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As everyone knows, you spent the first nine days in SCBU getting your breathing straightened out.

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Daddy and I were so happy when you finally got to come home.
Adam brought into the house

But then, tragedy struck….you fell out of Mama’s arms at 3 weeks and spent two more nights in the hospital with a concussion and what turned out to be broken ribs.  This led to the Saga of The Lump which is still not concluded as of this writing, although you have a new surgery date of 21st June.

And then you began to develop and Daddy and Mama looked on with glee as you smiled, and rolled over and sat up and stood.  Now you’re cruising and getting ready to walk all by yourself.

And all through it, you’ve made Mama and Daddy laugh with your antics and how pleased  you are with yourself when you learn something new.

Your favourite things are: –

  • Bouncing.  You bounce on the bed.  You bounce in your cot.  You bounce in your playpen just using your knees and your bottom.
  • When Daddy swings you around in the air.
  • When Mama sings the Adam song during nappy changes. “A is for Adam, he is a little boy.  A is for Adam, he likes to play with toys.  A is for Adam, my lovely baby son! Adam Adam Adam’s number 1!!!!!” to the tune of ‘C is for Cookie’.
  • Ducks.  All sorts of ducks.  In the bath.  To play with during nappy changes.  Sitting on Mama’s lap.

And your next adventure starts in just under a month when you begin at daycare two half days a week.

Mama is so excited for you and kinda sad.  Its time for you to go off and have adventures without her.  And she knows you’re going to have fun.  But she’s going to miss you.

Happy Birthday my lovely son.

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Adam Adam Adam’s Now One!

I love you

Mama

I Have Truly Gone To The Darkside..,

Why? Because I am posting this from my iPhone!!!

That’s right boys and girls.

The darkside…

Quick Update

Adam’s Surgery is now 21st June.  Hopefully this time for real.

I Have Been *So* Bad About Updating

My life in bullet points: –

  • Designed To A Tee started its first contract on 1st June.  Some kinks to work out, but mostly having a blast working for myself doing nothing but web/graphics.
  • Mum and Step-Dad are visiting.  Arrived on 3rd, heading to London tomorrow then back on 10th until 15th.  Adam is basking in the never ending attention.
  • Adam stood up!  All by himself.  We even had 1/5th of second of no hands before he landed on his bottom.  First steps can’t be far behind.
  • Next Friday, 11th June 2010, Adam will be 1.  This has been the fastest year of my life.  And the most fun.
  • I’ve lost a total of 10 pounds on Weight Watchers, for a my 5% loss star.  Go me!

And that’s the news.  I’ll try to be better at this again!!

And Another One For The Baby Book

Chicken Pox aged 11 months and 2 weeks.

And a massive ear infection including draining goop.

He’s not too bad.  A little cranky.  Keeps tugging at his ear.

But he’s taking all of his meds with no complaints.

Now we just have to see how he sleeps tonight…

The Next Part of Adam’s Life Starts in About 6 weeks

when he will, most likely, be starting day nursery.

I found a lovely place that will take him for 2 mornings a week, from 9 – 2.  The price is reasonable and the place is wonderful!  Bright, cheery, well cared for.  Lovely friendly staff.  Excellent facilities.

And so in about 6 weeks (hopefully post-op), Adam will be away from me for 10 hours a week.  For the first time since he was born.

Okay, that’s a bit of an exaggeration, but any other time he’s been away from me he’s been with his dad or his grandma.  Never with strangers.  Even if strangers have been holding him, I’ve been right there.  Or at least not too far away.

This is the first time I’ll be handing him to complete strangers and leaving him.  Saying, go, grow up without me.  Become the wonderful big boy I know you’re going to be. Learn.  Play.  Make friends.

Am I sad? Hell yes.  And will be even more so when he actually starts to go.

Will I enjoy the time off? Hell yes.  But I’ll miss him.

And the saddest part? I left him in the baby room today while I toured the facilities.  And he didn’t even seem to notice.

Although I did get a big head butt snuggle when I picked him back up.

So I guess he missed me…

Letter to My Son – Adam – 11 Months Old

Dear Adam

Well, I was hoping to start this letter with the words ‘and The Lump is gone’  but it was not to be. We got to the hospital yesterday to find out that your surgeon was out because his daughter was very ill.  The surgeon that was covering was not comfortable removing The Lump since he wasn’t familiar with the case.  You are, theoretically on the top of the cancellation list and should, hopefully, be able to have it done in just a few weeks.  Mummy and Daddy will be ringing a lot to make sure that happens.

Otherwise, its been a fairly busy month.  We spent a weekend at Grandma and Grandpa’s for their 40th Wedding Anniversary.  Your aunt, uncle and cousin were there as well: –

Adam, did I tell you about the time...

snuggly grandpa Grandma snuggles

Daddy and I were hoping seeing your cousin crawling would inspire you, but no such luck.  Although you have been trying to pull yourself up on things.  Mummy and Daddy think you may skip crawling all together and go right to cruising around.

You’ve also this month taken to shaking your head no, but just because its fun.  You don’t actually seem to be saying no!

But of course the most exciting thing this past month is this: –

Love

Mummy

Nope, Not Over Yet…

Adam’s Surgery – Cancelled he surgeon’s daughter is very ill so he was not available. The surgeon
covering did not feel comfortable doing the procedure.

It will be at least 2 weeks although we are on the top of the cancellation list.
But the surgeon is off this week and next week for sure.

I am frustrated as all hell, but obviously this is the best for Adam.